A Draining Week!

I think this week has had its share of ups and downs. What a roller coaster we've been on! It all started Sunday. We had been anticipating Sunday for quite some time. Our friends Shelly and Blake asked us to come over after church for lunch and hang out for the day so we didn't have to go home and come back into town for the church's Thanksgiving Supper on Sun. night. During church Daraby started to scream in pain and rejected the bottle even though she was so hungry. Eventually I had to go sit in the suburban with Daraby because she was to loud. Throughout the day she had up and down moments. She would scream in pain, sleep a little, eat a little and then coo for a bit. It was a bit confusing. In the end, we had a pretty enjoyable day. It was so nice to connect with Blake and Shelly, catch up with people at church and eat great meals.
On Monday Daraby continued to eat less and I figured she wasn't feeling so well but didn't want to get overly worried. The books and people say kids will vary in the amounts they eat. She was still cranky and cried quite a bit so I kept a close eye on her. By Tuesday she had only ate 7 ounces in 16 hours. I was horrified and took her into see the local family Dr in our town. I was hoping it was an ear infection and we wouldn't have to drive 2 hours to see the pediatrician. No such luck- Daraby was sick and the Dr was concerned. She told me to keep her hydrated with Pedialite and as much formula as she would take. I was stressed and very worried but didn't want to flip out. That night my mom drove down to help me out.
On early Wednesday morning we drove to the pediatrician. After seeing her reject the bottle he ordered a GI test in the hospital. For the GI test Daraby had to drink barium and then they took a whole bunch of x-rays of the fluid in her stomach to monitor the acid reflux/GERD. They also wanted to see if her intestines were in the right place. During the testing the nurses took Daraby and shooed us out of the room. In 10 minutes or less they called us back because Daraby was being inconsolable. When we got out of the hospital we went back to talk to the Dr. He said he didn't see anything of major concern. She has GERD and we've known that all along so once again we don't really have answers. He prescribed a different drug and said he hoped that helped.
At this point I'm really frustrated. Daraby has been on 3 different drugs and so far there has been improvement and then she regresses so they up the dosage amount. I hate having her on drugs especially drugs that haven't been approved for infant use. I don't want her to be sick and I want her to eat. I hate hearing her scream for hours in pain. I feel terrible as a mom for not being able to take her pain away. I just want answers.
On Wednesday afternoon we took Daraby to a wonderful Chiropractor. She was great. She wanted to know all about Daraby and her condition. Unlike so many Drs she wasn't rushed, she didn't want to give easy answers, she didn't just adjust her and say see you later. She sat and talked to us for 45 min or more and then loved on Daraby. She hung Daraby upside down and adjusted her hips and back. Daraby relaxed, cooed and drank an entire bottle. Something she hadn't done in days. It was a relief!
In the last three days Daraby has ate some but has been constipated. She has had happy and mad moments. She hasn't slept well and has been up several times a night. It is rather frustrating and concerns me that things aren't improving as much as I would have expected.
Today mom and I set up a booth at the Wesleyan Women's Craft Fair. I had been planning for this craft fair for at least a month- so I was so excited. I had made cards and Mom had sewed some pillows and burp cloths to sell. We did sell many items and got to socialize with many people in the community. Daraby, on the other hand, was upset and cranky so when Andrew got done hunting he came and got her and took her home. After the craft fair mom helped me pack up and get home and then she went back to SD. She is a true blessing. She stepped in several times when I or Andrew was to tired to take Daraby. It doesn't seem to phase her when Daraby is screaming her head off. I was thankful for help getting to the Dr and coming home. Thanks Mom!
Funny thing is after mom left Daraby seemed to get worse again. She was screaming and mad as can be this afternoon. She really didn't want to eat and couldn't go potty. I'm so worried, frustrated and sad. I suppose Monday I'll be making the trek back to the Dr to try to get some answers. In the meantime please add little Daraby to your prayer list and we try to understand what is going on with her body to make her feel so bad. Pray that she would start to eat more and digest her food properly. We just don't know what to do.